"At thirty-two, Ady Barkan had everything he wanted: a fulfilling career in the progressive movement, a brilliant wife, and a beautiful newborn son. Then his luck ran out. What he thought might be carpal tunnel was in fact ALS, a neurological disease that would probably paralyze and kill him quickly"--Jacket flap.
what you really want to ask about having a disability
Burcaw, Shane
The disabilities advocate addresses the most common questions he receives about his life with spinal muscular atrophy, discussing his physical challenges, his everyday life, and the help he receives with optimism and humor.
what you really want to ask about having a disability
Burcaw, Shane
2017
"A picture book answering the questions young children ask Shane Burcaw about his wheelchair and life with Spinal Muscular Atrophy with equal parts optimism, humor, and empathy."--OCLC.
