cystic fibrosis

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Topical Term
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a
Alias: 
cystic fibrosis

Cystic fibrosis

Cystic Fibrosis is a fatal genetic condition that affects people physically and mentally every day. This book describes the disease and the genetic causes behind it, follows researchers on their path to scientific discovery, identifies people who have excelled despite the condition, and tracks the latest treatments and research aimed at helping those with the condition. Sidebars highlight medical breakthroughs and the people who made them.
Cover image of Cystic fibrosis

Robyn's book

a true diary
1986
Robyn expresses her thoughts about growing up while suffering from cystic fibrosis, a disabling disease that gets worse as she gets older. Contains stories, thoughts, poems, and an essay.

Breath

2003
Elaborates on the tale of "The Pied Piper," told from the point of view of a boy who is too ill to keep up when a piper spirits away the healthy children of a plague-ridden town after being cheated out of full payment for ridding Hameln of rats.

A little love story

a novel
2005
Janet Rossi, beautiful aide to the governor of Massachusetts, suffers from an illness that threatens her future, and feels that starting a love affair with carpenter Jake Entwhistle would lead to nothing but heartache, but she soon learns love does not wait for the perfect time.

Cystic fibrosis

the ultimate teen guide
2006
Provides information and guidance on cystic fibrosis for teenagers, covering diagnosis, treatment, daily life, complications, lung transplants, and other topics; presents several case studies; and includes a list of further resources.

Cystic fibrosis

2009
This book discusses cystic fibrosis presenting information on symptoms, treatment, and controversies on newborn screening, genetic testing, and lung transplants.

Forever changes

2008
Although encouraged to apply to colleges, Brianna Pelletier, a mathematically-gifted high school senior with cystic fibrosis, dwells on her mortality and the unfairness of life.

Everything you need to know about cystic fibrosis

2001
Presents an overview of cystic fibrosis and how to deal with it, covering its scope, symptoms, diagnosis, treatment, and research; also includes a glossary, a bibliography, and list of related organizations.

Alex, the life of a child

1984
A father tells of his daughter, born with cystic fibrosis.

Living with cyctic fibrosis

2003
Contents: Shannon's story What is cystic fibrosis? What causes CF? What's it like to live with CD? How do we know about CD? How do we help people with CD today?.

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